Sunday, August 16, 2009

We made it home!! We got home from Mayo at Rochester late Saturday and Grandma and Grandpa brought Kiley home this morning. It is so nice to be home.

Kiley did great at the grandparents and is already going through withdrawals asking about Papa and Pee Wee(the kitten) all afternoon or at least after I woke her up after sleeping for almost 4hrs. I think that they wore her out.


Eli did amazing this week. He was a champion w/all the blood work and tests. It was a long week, but we did have a little free time between procedures and appointments. We went bowling, did a paddle boat, swam, and got to see Sesame Street Live thanks to the Ronald McDonald House.
Eli made a little friend at the house, Noah, they played together and got to go to the show together. Eli was on a liquid diet for two days while there so the night after his scopes and biopsies we got him a pizza and he ate the whole thing!
All of our doctors this week were great and the facilities are amazing, the picture below is in one of the waiting areas. Eli was waiting for his last round of blood work w/his doctor hat on that they gave him at surgery and his plane that one of the office doctors gave him. I wish I could say that they know for sure what is wrong but we do not, they like previous doctors are leaning toward chrones but also looking into the possibility that he has something else on top of that b/c of the severity of his ulceration. We are waiting on two test that Mayo sends out for a little more direction or at least knowledge before making major decisions about his future treatments.

1 comment:

  1. Hello! My sister Gwen told me she had found your blog and mentioned to me that you had been in Mayo with your little boy. I hope you can get some answers.
    Wishing you the best!
    Christy Grimm Zeltwanger

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